Global Nonprofit CureDuchenne is hosting the FUTURES National Conference for the Duchenne Muscular Dystrophy Community April 20-23 in San Diego
The three-day conference welcomes attendees from around the world for the latest research and community building
NEWPORT BEACH, CA., March 9, 2023 /PRNewswire/ — CureDuchenne, a global non-profit organization dedicated to finding and funding a cure for Duchenne Muscular Dystrophy, announced that its national FUTURES conference will be held on 20-23 April 2023 In San Diego, California. FUTURES is a three day event focused on bringing education, connection and hope to the Duchenne community. The annual event will be held as a hybrid event, offering attendees the opportunity to attend both online and in person at the Marriott Marquis & Marina.
This year’s event theme is ‘Bright Futures’, with an emphasis on accelerating critical research, improving care and quality of life for all, and fostering a community that supports one another and tackles the future together. CureDuchenne features insightful and interactive presentations on a variety of relevant topics, including the latest research and therapies for people living with Duchenne Muscular Dystrophy, insights from industry thought leaders, social events for the whole family, a gaming lounge and more.
“On the occasion of our 20thth As we celebrate our anniversary, we can’t wait to connect with families and our health community to share important research, have thoughtful discussions about new approaches to care, and spend quality time together,” he said Debra Mueller, Founder and CEO of CureDuchenne. “We are at a critical time as potentially transformative therapeutic treatments emerge, and we have much to share.”
Recurring keynote speakers Justin Skeesuck And Patrick Gray will gain new insights and inspiration from their latest accessible journey through the camino en Santiago. “Our experience during last year’s FUTURES conference connecting with families, parents, carers and individuals with Duchenne was tremendously impactful,” said Justin Skeesuck. “We’re excited to share new stories this year that we hope will help encourage others to find and nurture meaning no matter the circumstance.” Skeesuck and Gray’s inspiring story of their 500-mile trek through the rugged terrain in the north Spainwith Patrick and others pushing Justin in a custom-made wheelchair was told in an extraordinary documentary entitled I’ll Push You.
The event starts on Friday, April 20thwith a “CURE” theme, with an engaging keynote panel featuring industry leaders among them Kevin Flanigan, MD, Director of the Center for Gene Therapy at Nationwide Children’s Hospital, Carsten G. Boennemann, MD, Senior Investigator at the National Institutes of Health, Emil Kakkis, MD, PhD, Founder, President and CEO of Ultragenyx, and more. They will discuss the achievements, insights, challenges and future of Duchenne research. Research sessions will highlight gene therapy and gene editing, RNA-targeted therapeutics, and muscle maintenance and anti-inflammatory treatment approaches. On Saturday, “CARE” will be the focus, with healthcare providers discussing key advances and recommendations in their areas of expertise, as well as breakout sessions for caregivers of people of all ages with Duchenne, including sessions for adults with Duchenne. Sunday concludes the three-day conference with a focus on COMMUNITY, emphasizing family support, coping with everyday challenges, and clinical care, research and mental health for Duchenne carriers.
All weekend long, CureDuchenne offers on-site child care and activities for the whole family, including a children’s gaming lounge and an adult hangout lounge with Duchenne. Personal registration fee is $100 per adult, with $50 Early bird rates available until March 13, 2023. Virtual participation is free. There are also no fees for adults with Duchenne disease and children under 16 years of age.
For registration information, full agenda and details, visit cureduchenne.org/futures.
Twenty years ago, CureDuchenne was founded with one goal: to find and fund a cure for Duchenne muscular dystrophy, the leading genetic cause of death in boys. Today, CureDuchenne is recognized as a global leader in research, patient care and innovation to improve and extend the lives of people with Duchenne. CureDuchenne’s innovative venture philanthropy model has advanced transformative treatments for Duchenne muscular dystrophy, including 17 projects that have led to human clinical trials and multiple projects to overcome the limitations of exon skipping and gene therapy. In addition, CureDuchenne contributed to the early funding of the first FDA-approved Duchenne drug, pioneered the first and only Duchenne certification program for physical and occupational therapists, and created an innovative biobank and data registry to advance research toward a cure accelerate. Visit cureduchenne.org for more information on how you can raise awareness and funds needed for research.
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